News

Telehealth is Now Available at the University of Miami Hemophilia Treatment Center!

The HTC hopes that all of our patients and families are staying healthy during the restrictions imposed by the pandemic. While it is definitely frustrating and stressful to not see most, if not all, of our patients in clinic, the University of Miami Health System has streamlined a telehealth option which is currently in development for pediatric patients.

Telehealth or remote visits allow health care providers and patients to interact in real time, using computer access. We can see you; you can see us. We can have conversations, and “see” a problematic joint or bruise. We can ask questions and depending on the situation, figure out if you/your child has difficulty moving a joint or an extremity, which would result in more informed management.

Labs would need to be done at Quest Diagnostics or LabCorp—orders would be placed through the UChart app as usual.

Not every issue would require a telehealth visit, just as many issues have been managed through email and phone conversations in the past. You may certainly call the main office number—(305) 243-0834, and leave a message. You may certainly email any of the providers, as per the earlier email blast. If a televisit seems necessary, then you would go on and get that set up as per the instructions.

Call the scheduling line as you would ordinarily do, and request a telehealth visit with your provider.

Families must  have access to any electronic device that has a build-in camera and microphone (laptop/desktop/tablet/iPhone) for a video visit.

In order to participate in a Telehealth visit, our families MUST have an active MyUHealthChart account to access the video visit link. You will be able to gain access to the MyUHealthChart portal at the time that you register for the televisit. At that time you will also have to “sign” a consent for a televisit, just as you have to sign a consent for treatment whenever you check-in for clinic visit. The scheduler will assist you with these preparatory tasks.     

FYI for Pediatrics:

To grant parents access to the MyUHealthChart site–Per Registration, parents must provide their full name, date of birth/DOB and an email address they want associated with the pediatric patient’s account.

Before proceeding with scheduling, please be aware that your insurance may or may not cover the visit. Insurance coverage rules for TeleHealth visits are changing daily.  If you proceed with the Telehealth visit, UM will bill your insurance accordingly.  If telehealth is not covered then, as always, you will be financially responsible for the copay assigned by your insurance company. CMS (Centers for Medicare & Medicaid Services) will cover telehealth services nationally for Medicare and Medicaid patients. Check with your insurance carrier to find out if telehealth is covered.

As per the earlier email blast, your HTC team is working, although often remotely, and are available to address your needs and concerns.

Email communication and phone message responses may be delayed but there should be a response to a non-urgent matter within the business day.

We are sure that this additional technology will be helpful for our families during this challenging time.

Information regarding the access to the telehealth option for our adult patients will be forthcoming when available.

For urgent matters outside of normal business hours (Monday-Friday from 9A-5P) and after-hours:

PEDIATRIC PATIENTS:

Call (305) 585 – 5400 and ask to speak with the Pediatric Hematologist On-Call.

ADULT PATIENTS:         

Call (305) 243 – 1000 and ask to speak with the Adult Hematologist On-Call.

For non-urgent matters, please call the main number at (305) 243 – 0834 and leave a message. Please be advised that responses may be delayed.

The HTC team appreciates any suggestions from our families, as you work within the limitations necessary to prevent the spread of the COVID-19 virus, to improve our communications with you all.

Click here for additional instructions.

At this webinar, we will discus what step therapy is and how it affects the bleeding disorders community. Mark Hobraczk with the Hemophilia Federation of American will lead this discussion and answer questions.

We will also have a patient in the webinar with us to tell her story and give tips on how to push this issue forward for the 2021 Florida legislative session.

Please RSVP to info@bleedingdisorderscoalitionofflorida.org for the log in information.

This is a great way for you to become an advocate for yourself and the bleeding disorders community of Florida!

A Message from the University of Miami Hemophilia Treatment Center:

The University of Miami HTC team will be accessible to our families during the Coronavirus pandemic.  However, there may be delays in responses due to team members working remotely, on varying schedules.

For phone calls: 305 – 243 – 0834 remains the primary contact number.  For true emergencies, please call 911.

For urgent matters and after-hours:

PEDIATRIC PATIENTS:
Call 305 – 585 – 5400 and ask to speak with the Pediatric Hematologist On-Call. 

ADULT PATIENTS:
Call 305 – 354 – 1000 and ask to speak with the Adult Hematologist On-Call.

For non-urgent matters, please call the main number at 305 – 243 – 0834 and leave a message. Please be advised that responses may be delayed.

To reach a team member directly, below is a directory of email addresses:

·        Dr. Joanna Davis (Pediatric Hematologist): jdavis3@med.miami.edu

·        Dr. Fernando Corrales-Medina (Pediatric Hematologist): ffc5@med.miami.edu

·        Dr. Thomas Harrington (Adult Hematologist): tharring@med.miami.edu

·        Krysten Sargenton, APRN (Pediatric Nurse Coordinator/On behalf of Maya Bloomberg, APRN, Adult Nurse Coordinator): k.sargenton@med.miami.edu

·        Kelli Fraga, PT, DPT (Pediatric/Adult Physical Therapist): kaf113@med.miami.edu

·        Annalise Guerra, MSW (Pediatric/Adult Clinical Social Worker): a.guerra3@med.miami.edu

·        Magaly Gonzalez (Clinical 340B Program Coordinator): mgonzalez28@med.miami.edu

The HTC team appreciates any suggestions from our families, as you work within the limitations necessary to prevent the spread of the COVID-19 virus, to improve our communications with you all.

 


 

Additional resources

·               World Health Organization COVID-19 Information

·               Centers for Disease Control and Prevention COVID-19 Information

·               Florida Department of Health COVID-19 Information

·               U.S. Department of State Travel Advisories

·               Centers for Disease Control and Prevention Travel Health Notices

The Florida Department of Health has activated a hotline for people in Florida who have questions about COVID-19. The call center is available 24 hours a day, seven days a week and can be reached at 866-779-6121 or COVID-19@flhealth.gov.

It’s Valentine’s Week and HFGF is proposing… that you register for the 2020 Gator Clot Trot 5K and Fun Walk!  Use this sweet week to sign up and invite all of your dearest ones to do so as well.

The 2020 Gator Clot Trot is on March 14th at Depot Park.  Onsite registration begins at 11:30 AM and the 5K takes off at 12:30 PM.  Walkers leave after all 5Kers are done. 

Don’t forget, HFGF loves you and 89% of all fundraising dollars support the bleeding disorders community by:

Sending HFGF kids to Camp Spirit
Funding HFGF students with scholarships
Helping HFGF patient when they need emergency financial assistance and other items like Comfy Caps and MedicAlert memberships
Providing educational programs for HFGF families

Thank you for being an HFGF Valentine this week and always!

CLICK HERE TO REGISTER NOW!

 

 

Past Our Bedtime
Wednesday, February 5, 2020 | The Abbey | 7:00 pm

Come hear stories about rebellion, a time when sleeping took a backseat to life, or the moment when we channeled our inner-child and laughed ourselves silly. Who knows what we will hear on the OSC stage with Past Our Bedtime?!

All proceeds support Hemophilia Foundation of Greater Florida (HFGF). HFGF helps people with bleeding disorders improve their lives by providing tuition to a medically supervised camp, scholarships, emergency financial assistance, educational programming, and more.

Admission: $5 (additional donations encouraged)

Doors open at 6:30 p.m.; Show starts at 7:00 p.m.

Click here to purchase your tickets now

Anyone with a story can put their name in the hat for a chance to share a 5 minute story. 10 names will be drawn at random. 3 randomly selected judges from the audience will score the storytellers. 1st, 2nd, and 3rd place winners receive a prize!

Come laugh, listen, drink, and help build our community!

CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.