News

FOR IMMEDIATE RELEASE

September 19, 2019
Contact: Leah Nash
leahnash@hemophiliaflorida.org
407.629.0000 X103

 

HEMOPHILIA FOUNDATION AWARDS $28,800 IN ANNUAL STATEWIDE SCHOLARSHIPS
Most Recipients Pursuing Degrees in the Sunshine State

The Hemophilia Foundation of Greater Florida (HFGF) awarded 14 students attending college this fall with scholarships totaling $28,800. Since the scholarship’s inception, HFGF has granted close to $180,000 to worthy recipients with bleeding disorders.

The Calvin Dawson Memorial Scholarship, named in honor of founder and first executive director of the HFGF, has been assisting those in the bleeding disorders with their higher education for the past 20 years.

“It is always such a pleasure to help these you ng men and women as they pursue their educations,” says HFGF Executive Director Fran Haynes. “Eighty-nine percent of all HFGF fundraising dollars assist members of the bleeding disorders community, including our annual scholarships program.”

HFGF scholarships are earmarked for Floridians with hemophilia, von Willebrand disease and other related hereditary bleeding disorders. Scholarships are attainable for high school graduates pursuing post-secondary education at a college, technical or trade school, or through other certification programs. Awards are based on merit, need, community service, and ambitions of the applicant as reflected in an essay.

Only two recipients are attending out-of-state schools while the remainder remain in state. This year’s recipients are:

Alexia Barillas, (Boca Raton) Palm Beach State College; Andrew Farren, (St. Petersburg) St. Petersburg College; Faith Runyon (Ocala) College of Central Florida; Herman Robinson (Tampa) Webber International University; Hope Runyon (Ocala) College of Central Florida; James Solomon (Clermont) University of Central Florida; Justin Horbacz (Reunion) University of Florida; Michael Berkman (Windermere) Syracuse University; Miguel Diaz-Burgos (Ocoee) Valencia College; Natalie Rubin (Tampa) University of South Florida;  Olivia HoffSaint (Tampa) Mary’s College; Raymond Torres (Valrico) University of Central Florida; Tyler Nazario (Melbourne) Eastern Florida State College; and Xavier Fuentes (Orange Park) University of Florida.

Please visit hemophiliaflorida.org for more information about HFGF, hemophilia and other bleeding disorders, and/or HFGF fundraising walks.

###

Note To Media:  If you’d like more information about the Hemophilia Foundation of Greater Florida, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at leahnash@hemophiliaflorida.org or 407.629.0000 X103.

September 12, 2019

 

Contact: Leah Nash

leahnash@hemophiliaflorida.org

407.629.0000 X103

FOR IMMEDIATE RELEASE

 

Red Fundraiser to Usher in 2020

Support a Cause and Tour the Exclusive American Muscle Car Museum

 

Don your favorite red cocktail attire and kick off 2020 at the Hemophilia Foundation of Greater Florida (HFGF) Red Party, January 18, hosted by the American Muscle Car Museum in Melbourne. The inaugural event will support Florida’s bleeding disorders community. Sponsorships are available.

 

Besides the collection of more than 250 cars on display in a 123,000 square-foot facility, the museum is distinct because it is not open to the public. Viewing can only be accessed at events like the HFGF Red Party or scheduled private tours.

 

Tickets for the fundraiser are $100, which includes a reception with light hors d’oeuvres, drinks, a live auction and access to the museum.  A limited number of VIP tour tickets are also available for $200.  The tour is led by museum owner Mark Pieloch.

 

Chris Carson, whose one-year-old son was diagnosed with Hemophilia six months ago, is friends with Mark and helped coordinate the event.

 

“Mark is so gracious to open the museum for the bleeding disorders community so we can raise some money and build awareness for Hemophilia,” says Chris.

 

Fran Haynes, HFGF executive director, says 89% of the money raised from the HFGF Red Party will support programs for Florida’s bleeding disorders community such as the HFGF medically supervised Camp Spirit, family support weekends, health educational programs and financial emergency assistance. HFGF has been serving the bleeding disorders community since 1996 by supporting healthier and more independent lives.  

 

“Members of the Brevard County bleeding disorders community spearheaded this event to raise funds and build awareness on the east coast of Florida,” says Fran. “We hope everyone will wear red to show their support.”

 

For tickets and sponsorship information, visit http://www.hemophiliaflorida.org/redparty. For more information about HFGF, Hemophilia and other bleeding disorders, and/or HFGF fundraising efforts, visit hemophiliaflorida.org. Personal chronicles can found at hemophiliaflorida.org/VoicesofHFGF.

 

###

 

Note To Media: If you’d like more information about the Hemophilia Foundation of Greater Florida, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at leahnash@hemophiliaflorida.org or 407.629.0000 X103.

The Hemophilia Foundation of Greater Florida (HFGF) is pleased to present the 16th Annual Evening on Broadway, February 17, 2018, to see The Lion King live on stage at the beautiful Dr. Phillips Center for the Performing Arts in downtown Orlando.

Tickets, which include a reception with silent auction/raffle, as well as orchestra seating are now available for $150, of which more than 90% will go to the bleeding disorders community in Florida. The reception begins at 6 p.m., followed by the performance. Visit hemophiliaflorida.org/theatre to purchase your tickets before they run out.

The 16th Annual Evening on Broadway supports the Florida bleeding disorders community through family support weekends, health educational programs, providing financial emergency assistance, scholarships to students, and sending HFGF patients to a medically supervised summer called Camp Spirit.

The cost of treatment varies for those who have hemophilia and other bleeding disorders, however, costs are typically high due to the price of medication, as well as the number of times it must be administered. A single dose of clotting medication, for example, which sometimes only lasts one day, can cost as much as $6,500—or more. These costs do not reflect procedures that are outside of routine maintenance, such as having a tooth pulled, which could run in excess of $20,000.

“Our patients need us, and we are here to help them,” says Fran Haynes, HFGF Executive Director. “We try not to turn anyone away.” HFGF has been serving the bleeding disorders community since 1996 by supporting healthier and more independent lives.

HFGF is also looking for silent auction and raffle gifts. If your company would like to donate, please contact leahnash@hemophiliaflorida.org, or call 407.629.0000.

###

Note To Media: If you’d like more information about the 16th Annual Evening on Broadway, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at leahnash@hemophiliaflorida.org or 407.629.0000 X103.

Missy Zippel, R.N. , who retired in June after more than 30 years of working with Nemours Children’s Clinic in Jacksonville, has joined our staff working part-time. Missy will be based in Jacksonville. She will be providing education and outreach including infusion training, school visits and patient assistance.

Missy can be reached by email at:
missyzippel@hemophiliaflorida.org or you may leave a question or call back number at HFGF office at
407-629-000 or toll-free at 800-293-6527.

CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.