Hemophilia Foundation of Greater Florida

The Hemophilia Foundation of Greater Florida, a Chapter of the National Hemophilia Foundation, has been helping people with bleeding disorders since 1996. We have helped the bleeding disorders community improve their quality of life by offering programs and services to support healthier and more independent lives.

Two New Treatments Approved for Hepatitis C Virus (HCV)

 

Simeprevir

In November, the US Food and Drug Administration (FDA) approved simeprevir, a new oral drug, to treat the hepatitis C virus (HCV). Olysio, manufactured by Johnson & Johnson, is a protease inhibitor that halts the progression of HCV, preventing it from reproducing. The drug is used in combination with weekly injections of pegylated interferon (peg-IFN) and a daily ribavirin (RBV) oral pill.

 

In May 2011, the FDA approved the first protease inhibitors, Merck’s boceprevir (brand name Victrelis™) and Vertex Pharmaceutical’s telaprevir (brand name Incivek™). At the time, these two drugs represented the first new HCV therapies in ten years.

Last Updated on Thursday, 23 January 2014 02:12

Read more: Two New Treatments Approved for Hepatitis C Virus (HCV)

 

Formation of a New Bleeding Disorder Coalition

The Hemophilia Foundation of Greater Florida and the Florida Hemophilia Association are excited to announce the formation of the Bleeding Disorder Coalition of Florida, a collaborative advocacy group comprised of the two chapters, the state’s Hemophilia Treatment Centers and the bleeding disorders community at large.

The mission of the Bleeding Disorder Coalition of Florida is to preserve access to quality and affordable health care for all Floridians affected by bleeding disorders. In order to accomplish its mission, the Bleeding Disorder Coalition of Florida will educate necessary parties about bleeding disorders; develop and maintain relationships with key decisionmakers; cultivate relationships with organizations that have similar goals; inform consumers about its resources at all levels of government; and inform decisionmakers of the effects of legislation on persons with bleeding disorders and their families.

 

Last Updated on Thursday, 23 January 2014 02:14

Read more: Formation of a New Bleeding Disorder Coalition

 

Social Work Corner by Sandra Davy, MSW

Greetings, Community!

The New Year is finally here: 2014! Last year, HFGF gave Part I & Part II informative presentations of the Affordable Care Act in Tampa, Miami, Orlando, Gainesville, Jacksonville, and Fort Myers. Program speakers from Florida Blue and Health Insurance Brokers gave important information and provided immediate enrollment in the Marketplace, thereby avoiding enrollment problems that came about during the launch of the official WWW.healthcare.gov website.

Last Updated on Thursday, 23 January 2014 02:17

Read more: Social Work Corner by Sandra Davy, MSW

 

Family Programs

HFGF offers family programs through out the state of Florida.

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