The Hemophilia Foundation of Greater Florida and the Florida Hemophilia Association are excited to announce the formation of the Bleeding Disorder Coalition of Florida, a collaborative advocacy group comprised of the two chapters, the state’s Hemophilia Treatment Centers and the bleeding disorders community at large.
The mission of the Bleeding Disorder Coalition of Florida is to preserve access to quality and affordable health care for all Floridians affected by bleeding disorders. In order to accomplish its mission, the Bleeding Disorder Coalition of Florida will educate necessary parties about bleeding disorders; develop and maintain relationships with key decisionmakers; cultivate relationships with organizations that have similar goals; inform consumers about its resources at all levels of government; and inform decisionmakers of the effects of legislation on persons with bleeding disorders and their families.
Meet the co-chairs of the coalition:
Francis Aracena is an alumna of Miami-Dade College, who graduated with a degree in Political Science. She developed a passion for advocacy while serving as President of the Student Government Association. Her interest in the law, justice and equal opportunity has led her to a new venture: applying to law school! Inspired by her twelve-year-old brother Stephen (who has severe Hemophilia A with an inhibitor), she hopes to pave the way for accessible and affordable health care for those affected by bleeding disorders in the state of Florida while serving as a founding Co-Chair of the BDCF.
Sara Workman lives in the Tampa area with her husband Michael, two sons (Noah, 15 and Evan, 6) and their three dogs. Her passion for advocacy comes from her son Evan's diagnosis with severe Hemophilia A. In the last six years, she and her family have learned many important lessons about living with hemophilia, and the effects it has on her family’s lives. That has inspired her to ensure that this small community of people has a voice. She is proud to be a founding Co-Chair of the BDCF and looks forward to educating, advocating, and making a difference for the Bleeding Disorders Community.