Hemophilia Foundation of Greater Florida

The Hemophilia Foundation of Greater Florida, a Chapter of the National Hemophilia Foundation, has been helping people with bleeding disorders since 1996. We have helped the bleeding disorders community improve their quality of life by offering programs and services to support healthier and more independent lives.

NHF

NHF’s Announces 2012 Annual Meeting: “Mapping Our Future” in Orlando

The National Hemophilia Foundation is pleased to announce that its 64th Annual Meeting, “Mapping Our Future,” will be held November 8-10, 2012, in Orlando, Florida. This three-day conference is expected to draw nearly 3,000 people, from families and individuals with bleeding disorders to chapter staff, healthcare providers and industry representatives. It is the place to be to find out the latest treatments, meet with others who share similar concerns and enjoy a get-away in a family friendly setting. A sneak preview of sessions includes:

•“It’s a Guy Thing, Too: Men with von Willebrand Disease”

•“’I Don’t Need a Support Group—I have Facebook! Pros and Cons of Social Media as a Support System”

•“The Glass is Half Full: Reframing Emotional Challenges for Women”

•“Head, Shoulders, Knees and Toes! Exploring the Pros and Cons of Protection Devices, such as MedicAlert, Pads and Helmets.”

Once again, NHF will host a two-day Medical Track for Researchers and Physicians. One of the highlights of that meeting is a poster abstract presentation and reception. Separate tracks for nurses, physical therapists and social workers will provide sessions on inhibitors, sports participation and the role of social workers in genetics, respectively.

So mark your calendars and start planning for NHF’s 64th Annual Meeting in Orlando. Stay tuned for registration and hotel accommodation information coming later this spring.

Apply Now for Annual Meeting First-time Attendee Grants

The National Hemophilia Foundation is pleased to offer Educational Participation Grants for first-time attendees of its 64th Annual Meeting, “Mapping Our Future” in Orlando, FL, November 8-10, 2012. The grants are given to individuals and families with bleeding disorders who have never attended an annual meeting. They cover such costs as airfare, hotel, expenses and/or registration fees. Awards are based on several factors, including financial need.

Download and print your application form to apply for a 2012 NHF Educational Participation Grant. Applications are due by mail to NHF’s office in New York City. They must be postmarked no later than Friday, June 22, 2012.

For more information, e-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it.

National Youth Institute Leadership Application

Program Goal

The goal of the National Youth Leadership Institute at the National Hemophilia Foundation is to provide youth in bleeding disorders community with leadership opportunities to effect change and positively influence others.
Program Overview

The National Hemophilia Foundation has designed the National Youth Leadership Institute to assist young people from the bleeding disorders community to become well trained, recognized leaders. NHF works closely with youth through training and support; NYLI members provide educational presentations and programs to the bleeding disorders community. NYLI provides an amazing opportunity for youth to learn and share experiences of living with a bleeding disorder.
Applications are released each May. Youth may remain in the program for three years total, but are requested to renew their membership annually.
Program Objectives


1. Increase Leadership Opportunities for NYLI Members
2. Increase Education for the Bleeding Disorders Community
3. Increase Visibility and Reach of NHF Messaging
NYLI members will meet these objectives through trainings, educational programming and internships. Below is a list of the activities members will be expect to take part in. Each year will include Annual Meeting and Spring Leadership trainings, but responsibilities within each year will differ slightly allowing for growth and unique opportunities.

Download the Application: