Hemophilia Foundation of Greater Florida

The Hemophilia Foundation of Greater Florida, a Chapter of the National Hemophilia Foundation, has been helping people with bleeding disorders since 1996. We have helped the bleeding disorders community improve their quality of life by offering programs and services to support healthier and more independent lives.

Patient Notification System

Patient Notification System (from the National Hemophilia Foundation website)
The industry-wide Patient Notification System informs people when a blood product is withdrawn or recalled. 

Everyone should register with the Patient Notification System so they can be directly notified when adverse conditions occur with blood products.

The system is being administered by the National Notification Center. The identity of those individuals who have registered is completely confidential. 

Participating companies involved in the system are:
• Alpha Therapeutics 
• Baxter Healthcare 
• Bayer Corporation 
• CSL Behring 
• Genetics Institute 
• The American Red Cross 

Each person who registers with the Patient Notification System will select how they wish to be notified—telephone, express delivery letter, fax or e-mail. All participants will then receive a follow-up first-class letter back-up. Participants can also select which products they wish to be notified about. 

The system is available by telephone for updates and news at 800-UPDATE-U. There is also a Web site at www.patientnotificationsystem.org. 

Register with the Patient Notification System now!

• by phone: 888-873-2838 (888-UPDATE-U) 
• online Enrollment: www.patientnotificationsystem.org
• fax registration forms to: 1-800-442-2906 
• mail registration forms to: 
National Notification Center 
20 N. Meridian Street, Suite 300 
Indianapolis, IN 46204 

Register now to be directly notified of a recall or withdrawal. Stay informed!
 

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