The Houvouras Family
Hometown: Father – Palm Beach Gardens | Mother – Hackensack, New Jersey
Involvement with HFGF: 14+ Years
If you are attending the Hemophilia Foundation of Greater Florida’s Red Party January 18 at the American Muscle Car Museum to ring in 2020, be sure to say hello to the local Houvouras family.
Residents of Vieira, Andrew and Rayna are the parents of Kooper, 14, and 16-year-old Preston, who was diagnosed with Hemophilia A at age 3.
“I want Preston to get more involved with giving back,” says Andrew, who says they first reached out to the Foundation after Preston was diagnosed. “It will only be another two years before he is going off to college.”
As a baby, the undiagnosed Preston, now a junior at Cocoa Beach Jr./Sr. High School, almost lost his life from a nosebleed in 2007. At first, doctors believed surgery would cure his nose bleeds, but that was unsuccessful. A pediatrician then informed Andrew and Rayna that in the absence of trauma, their son was showing signs of three ailments: Leukemia, a brain tumor or a bleeding disorder. He was tested for all three.
Andrew and Rayna recall that receiving the news at Arnold Palmer Children’s Hospital in Orlando that Preston had Hemophilia was a sense of relief. Even more positive was that Preston had moderate Hemophilia A (4 percent of clotting factor) and would not need to infuse.
“It was the lesser of three evils,” says Rayna, who adds there is no history of Hemophilia in the family. “We were dealt the best hand we could have asked for,” adds Andrew.
Preston, who knows of no other life than having a bleeding disorder, has lived a pretty normal life. As with any child diagnosed with a bleeding disorder life was a bit nerve racking at first.
“I bubbled him when he was little,” says Rayna. “But I knew how important it was to let him live the life of a normal kid.”
Growing up, Preston learned coping mechanisms from his parents—Andrew is a behavioral analyst and Rayna a mental health counselor—and he understands that in the scheme of things, he is lucky. He knows others have a tougher road to haul, including a friend who has Type A diabetes. And while he may not be able to participate in contact sports—at age 11 he wanted to play soccer, but that was negated unless he wanted to begin infusing—he turned to swimming and baseball, the latter of which he hopes to turn into a career. The lanky six-foot-tall lefty pitches and plays first base for the high school’s varsity team. An A student, Preston is enrolled in the school’s IB program.
“He is super busy, super active, and super healthy,” says Andrew. “He does not let Hemophilia define him.”
While he still may bleed spontaneously, it only occurs through the nose, which avoids any joint-associated complications. Nonetheless, the bleeds can occur up to four times a month.
“Every single nosebleed is just as scary as the first one,” admits Rayna. “It can alarming.”
Determined to become more involved with giving back and helping out the Foundation, Andrew is planning to launch Hits for Hemophilia, in which money will be donated for base bits accumulated by his sons. Preston’s brother, Kooper, is a well-rounded ball player as well.
“We have always had great support, especially when Preston was younger and we didn’t really know much about hemophilia,” says Andrew. “We consider ourselves lucky.”