The Bleeding Disorders Coalition of Florida (BDCF) the legislative voice for the bleeding disorders community. We travel annually to Tallahassee and Washington D.C. to represent our families and talk to our legislators about issues that affect the bleeding disorders community.
BDCF encourages our families to get to know your local legislators and stay in touch with them throughout the year. As constiuents, your legislators work for you and should listen to your concerns.
Click here for a list of Florida Senators and their contact information.
Click here for a list of Florida Representatives and their contact information.
BDCF needs help procuring Bleeding Disorders Awareness Month and World Hemophilia Day proclamations from cities and counties across the state. If you are willing to make these requests on behalf of BDCF, please include email@example.com in your communication. Once proclamations are received, they will be posted here. Here is sample copy for your request:
WHEREAS, Hemophilia is a rare disorder in which your blood doesn't clot normally because it lacks sufficient blood-clotting proteins (clotting factors); and
WHEREAS, If you have hemophilia, you may bleed for a longer time after an injury than you would if your blood clotted normally causing weakness of the voluntary muscles; and
WHEREAS Symptoms of hemophilia may include unexplained and excessive bleeding, large or deep bruises, pain in joints, and nosebleeds without a known cause; and
WHEREAS, the Bleeding Disorders Coalition of Florida (BDCF) is an advocacy organization founded by the Hemophilia Foundation of Greater Florida and the Florida Hemophilia Association to be the voice of the Florida bleeding disorders community; and
WHEREAS, the Bleeding Disorders Coalition of Florida has been serving the bleeding disorders community to improve their quality of life by offering programs and services, such as a medically supervised camp, scholarships, advocacy efforts, emergency financial assistance, educational programs, etc., to support healthier and more independent lives; and
NOW, THEREFORE, I (NAME OF LEGISLATOR), do hereby proclaim the month of March 2020 as HEMOPHILIA AND BLEEDING DISORDERS AWARENESS MONTH in (NAME OF MUNICIPALITY).
IN TESTIMONY WHEREOF, I have hereunto set my hand and caused to be affixed the Great Seal of the (NAME OF MUNICIPALITY) this 1st day of March 2020.
UPCOMING BDCF EVENTS:
Hotel Duval is located at 415 N. Monroe Street in Tallahassee
2 PM: Strategy Meeting at Hotel Duval
3 PM: Meeting with Governor DeSantis' Office
6 PM: Legislative Training and Dinner at Hotel Duval
7:30 AM: Breakfast at Hotel Duval
Legislative Appointments Throughout Day (BDCF will make appointments)
11 AM - 1 PM: Debriefing Lunch in Minority Office, Room 316 in The Capitol
BDCF stormed Tallahassee on April 17 (World Hemophilia Day!) and 18 in 2019 to advocate on behalf of the bleeding disorders community supporting step therapy bills and opposing short term insurance plans. We also educated legislators on bleeding disorders and treatment. Click on photo below to view full album of our visit.
LEGISLATOR HIGHLIGHTS: Learn about your Florida legislators here and on HFGF social media. Discover what initiatives they support that affect the bleeding disorders community.
State Senator Annette Taddeo's people-first advocacy is rooted in her passion for service and humble beginnings. Annette is a champion for the community and continues to work tirelessly by listening to the needs, passions, and frustrations of her constituents. In Tallahassee, she is a relentless advocate for a clean environment, quality jobs, improved education, expanded healthcare access, and the public transportation we deserve.
Aaron Bean was first elected to the Florida Senate in 2012. He is currently serving as chair of the Appropriations Subcommittee on Health and Human Services. He also served a term as chairman of the Duval County Legislative Delegation in 2018. Before being elected to the Florida Senate, Aaron served eight years in the Florida House of Representatives.
Senator Wright was elected to the Senate in 2018 and represents Senate District 14, which consists of parts of Brevard and Volusia Counties. He currently serves as Chair of the Senate Committee on Military and Veterans Affairs and Space.
Senator Kathleen Passidomo was elected to the Florida Senate in November 2016 after having served in the Florida House of Representatives since 2010. She currently serves as the Senate Majority Leader and serves on the Appropriations Committee, the Appropriations Subcommittee on Health and Human Services, the Rules Committee, the Innovation, Industry and Technology Committee and the Ethics and Elections Committee. Senator Passidomo served as the Senate President’s appointee on the Statewide Council on Human Trafficking from 2017-2019 and currently serves on the Florida Public Service Commission Nominating Council.
In 2010, Senator Janet Cruz was inspired to fight for our community in the Florida House of Representatives. She quickly developed a reputation as a fierce advocate for hard-working families in Hillsborough County, focusing on the problems people face every day. In the Florida State Senate, Janet is a voice for the working class, a proponent of quality public education, and a protector of Florida’s children.
Senator Linda Stewart is a member of the Florida Senate, representing the 13th district, which includes northeast and central Orange County, working and fighting for the underprivileged, education, women’s rights, including equal pay for women, and equality for all, common sense gun laws and to protect our environment for future generations to come.
Senator Torres is proud to serve as State Senator for District 15, which covers all of Osceola County and parts of Orange County. Senator Torres serves as Vice Chair of the Commerce and Tourism Committee. He is a member of the Appropriations Subcommittee on Transportation; Tourism, and Economic Development; Children, Families, and Elder Affairs; Governmental Oversight and Accountability; Military and Veterans Affairs and Space and Joint Select Committee on Collective Bargaining. Senator Torres’s legislative priorities are issues that directly impact the health, safety and welfare of the community.
Senator Rob Bradley represents District 5, including Baker, Bradford, Columbia, Clay, Dixie, Gilchrist, Lafayette, Levy, Suwannee, Union and part of Marion Counties. He is the Chairman of the Senate Appropriations Committee and Alternating Chair of the Joint Legislative Budget Commission for the 2019-2020 Legislative Sessions.
Senator Anitere Flores has had the honor of representing Sweetwater, Westchester, Kendall, Country Walk, Monroe County and portions of Southwest Miami-Dade County since 2004. During her career in the Florida House, Senator Flores served as Deputy Majority Leader, Chair of the PreK-12 Appropriations Committee, and Chair of the PreK-12 Policy Committee. In order to increase college completion, she passed legislation that created a scholarship program for students who are the first in their family to attend college. As a member of the Florida Senate, Senator Flores is presently Chair of the Community Affairs Committee, Fiscal Policy Committee, and sits on the Appropriations Committee, Budget Subcommittee on Education, the Budget Subcommittee of Health and Human Services, the Criminal Justice Committee, and the Rules Committee. From 2010-2012, Senator Flores also served as the Majority Whip. From 2016-2018 Senator Flores became the first Hispanic woman to serve as President Pro-Tempore of the Florida Senate. From 2018-2020 Senator Flores is serving as the Deputy Majority Leader for the Florida Senate. In the Senate, she has championed several issues important to South Florida, including working towards finding affordable options for property insurance.
Elected to the Florida House of Representatives in 2018, Representative Tina Polsky represents the 81st District in Palm Beach County. District 81 is made up of unincorporated Palm Beach County, west of the turnpike from Boca Raton to Lake Worth and includes the three cities along Lake Okeechobee of Belle Glade, Pahokee, and South Bay. Representative Polsky currently serves on the State Affairs Committee, Agriculture and Natural Resources Appropriations Subcommittee, Children, Families, and Seniors Subcommittee, and the Transportation and Infrastructure Subcommittee.
State Representative Amber Mariano is a Republican serving District 36 in the Florida House of Representatives, which includes Hudson, Port Richey, New Port Richey and Holiday, Fla. Elected in 2016 at the age of 21, Mariano is the youngest State Representative to serve in Florida’s Legislature. While serving in the Florida Legislature, Mariano is championing to improve infrastructure issues in Pasco County and make the higher-education system more affordable and accessible. Mariano serves as Vice Chair on the Higher Education & Career Readiness Subcommittee and the Business & Professions Subcommittee. She is also on the Transportation & Tourism Appropriations Subcommittee, Education Committee and Alternating Chair on the Joint Committee on Public Counsel Oversight.
Representative Slosberg has dedicated her career to public service and safety advocacy. The Dori Slosberg Foundation was named in memory of her sister, Dori Slosberg, also daughter of Former State Representative Irving Slosberg, whose life was tragically ended when the car she was in crashed while she was unbuckled. Representative Emily Slosberg, along with her father, worked tirelessly to bring together issues and individuals concerned with safety on all major roadways in Florida. The Representative has been known to be very much involved in many organizations in Palm Beach County. Her involvement and service to the community include such organizations as the Young Democrats, the West Palm Beach Democrats, League of Women Voters, and National Organization of Women, all of which has allowed her to build relationships with other community leaders. All of these partnerships are allowing Representative Slosberg to have an immediate impact, ensuring a better quality of life for her constituents and the residents of Florida. Representative Slosberg has assumed the office in District 91, encompassing Delray Beach, Boca Raton, and some parts of Boynton Beach. During this current Session, she is keeping true to her public safety roots by filing a Texting While Driving Bill and a number of initiatives that benefit her predominately senior constituency.
Senator Lori Berman was elected to the Florida Senate in 2018 and has served in the Florida House of Representatives from 2010 through 2018. As a Representative, she was the Chair of the Women’s Legislative Caucus and Chair of the Palm Beach County Delegation. Throughout her tenure in the Florida Legislature, Lori advocates to ensure all Floridians have quality health care, that Florida’s educational system is properly funded, that woman’s rights are protected, that Florida supports alternative and renewable energy, and that Florida’s number one priority remains economic prosperity for all Floridians. Now serving in the Senate, Lori is on the leadership team in the Senate Minority as the Democratic Whip for the 2018-2020 term. She is also the Vice Chair of the Health Policy Committee and sits on the Education Committee, the Environment and Natural Resources Committee as well as the Appropriations Subcommittee on Agriculture, Environment and General Government. She represents the citizens of Palm Beach County and Florida in the Senate.
Representative Anthony Sabatini, District 32, was elected to the FL House of Representatives in 2018. Rep. Sabatini has previously clerked for then Chief Judge Alan Lawson, who now is a Justice of the FL Supreme Court and has also served as an Eustis City Commissioner until he resigned in 2018 to run for the Florida House of Representatives. In only his first term in office, 4 of his 6 bills passed the FL House, on the subjects of ethics reform, alcohol deregulation, restraining local government, and medical marijuana.
Representative Toby Overdorf has been a Treasure Coast resident for over twenty years, and represents District 83 in the Florida House of Representatives. He has served in the following leadership roles: President of the Palm City Chamber of Commerce, on the Board of Directors of Leadership Florida, and a member of the St. Lucie County Economic Development Council, among many other state and regional leadership positions. Representative Overdorf serves on the following committees: Commerce; Higher Education & Career Readiness; Higher Education Appropriations; Local, Federal & Veterans Affairs; and Transportation & Infrastructure.
Representative Shevrin D. Jones, District 101, was elected to the Florida House of Representative in 2012. When not serving in his capacity as a State Legislator, Representative Jones supports statewide literacy as the Executive Director of Florida Reading Corps and empowers youth through his organization, L.E.A.D. Nation. Representative Jones received his B.S degree in Biochemistry/Molecular Biology at Florida A&M University and his Master’s Degree in Higher Education Leadership at Florida Atlantic University. He is now pursuing his Ph.D. at Florida Atlantic University. He has proudly passed legislation to provide feminine hygiene products to women in correctional facilities and passed statewide needle exchange legislation.
Representative Tommy Gregory is a Sarasota Republican representing House District 73, Manatee and Sarasota Counties and was first elected in 2018. During his first session, Gregory filed a bill allowing small employers to collectively bargain for health plans to increase purchasing power. The bill also provides a safety net for Floridians with pre-existing conditions by prohibiting insurers from denying coverage based on their medical conditions.
***ADVOCACY ALERT*** - April 22, 2019
Download the Florida Medicaid Expansion Petition Form to put Medicaid expansion on the ballot for 2020. You must print out the form and send to Florida Decides Healthcare, Inc., P.O. Box 15415, Coral Gables, FL 33114. Petitions must be submitted by January 1, 2010.
HB 559, the fail first bill by Representative Massullo has been added to the agenda for the Health Market Reform Subcommittee on Tuesday, March 19 at 3:30 pm.In advance of the committee meeting on Tuesday, please be sure to email and call members of the committee to share your support for the legislation. Legislator contact information is listed below.
Draft Talking Points on Patient Access
- Thank you so much for working to ensure Florida’s patients remain happy and healthy.
- I wanted to express our strong support to expand and strengthen the patient protections currently in Florida statute.
- On behalf of Florida’s most vulnerable citizens, we are seeking your leadership and legislative action to ensure patients have access to the right medication at the most appropriate time without jumping through hurdles from an insurance company.
- Our physicians have the expertise to know what is best for patients and must have access to a full range of therapeutic options to use as they see fit. They should not have to jump through burdensome bureaucratic hoops to secure the most appropriate therapy. Ultimately, healthcare professionals, not bureaucrats, should make the determination of the best course of treatment and medications for a patient.
- We need to ensure Florida’s patients are receiving the right medicine at the right time.
- Respectfully, we ask that the legislator and fellow members, support House Bill 559 this legislative session by co-sponsoring the legislation and supporting it in committee.
|Last Name||First Name||Local Phone||Email Address||Staff|
|Pigman||Cary||(850) 717-5055||Cary.Pigman@myfloridahouse.gov||Brandon.Miller@myfloridahouse.gov; Justin.Morgan@myfloridahouse.gov; Maura.Palmer@myfloridahouse.gov|
|Fitzenhagen||Heather||(850) 717-5078||Heather.Fitzenhagen@myfloridahouse.gov||Derick.Tabertshofer@myfloridahouse.gov; Melissa.Thompson@myfloridahouse.gov|
|Good||Margaret||(850) 717-5072||Margaret.Good@myfloridahouse.gov||Elizabeth.Wilson@myfloridahouse.gov; Kay.Mathers@myfloridahouse.gov|
|Casello||Joseph||(850) 717-5090||Joseph.Casello@myfloridahouse.gov||Clint.Streicher@myfloridahouse.gov; Johnny.McMahon@myfloridahouse.gov|
|Duran||Nicholas X.||(850) 717-5112||Nicholas.Duran@myfloridahouse.gov||Roberto.Alvarez@myfloridahouse.gov; Yolanda.Abrams@myfloridahouse.gov|
|Fernandez||Javier E.||(850) 717-5114||Javier.Fernandez@myfloridahouse.gov||Maria.Lombard@myfloridahouse.gov; Ria.Khan@myfloridahouse.gov|
|Grant (M)||Michael||(850) 717-5075||Michael.Grant@myfloridahouse.gov||Cynthia.Beckett@myfloridahouse.gov; Jim.Browne@myfloridahouse.gov|
|Ingoglia||Blaise||(850) 717-5035||Blaise.Ingoglia@myfloridahouse.gov||Ashley.Hofecker@myfloridahouse.gov; Heidi.Coykendall@myfloridahouse.gov|
|Leek||Thomas J. ''Tom''||(850) 717-5025||Tom.Leek@myfloridahouse.gov||Lynnette.Phillips@myfloridahouse.gov; Stephanie.Benedict@myfloridahouse.gov|
|McClure||Lawrence||(850) 717-5058||Lawrence.McClure@firstname.lastname@example.org; email@example.com|
|Omphroy||Anika Tene||(850) 717-5095||Anika.Omphroy@myfloridahouse.gov|
|Rommel||Bob||(850) 717-5106||Bob.Rommel@myfloridahouse.gov||Kim.Timm@myfloridahouse.gov; Priscilla.Grannis@myfloridahouse.gov|
|Toledo||Jackie||(850) 717-5060||Jackie.Toledo@myfloridahouse.gov||Brianna.Harvey@myfloridahouse.gov; Clayton.Clemens@myfloridahouse.gov|
|Tomkow||Josie||(850) 717-5039||Josie.Tomkow@myfloridahouse.gov||Barbara.Blasingame@myfloridahouse.gov; Robyn.Bryant@myfloridahouse.gov|