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FOR IMMEDIATE RELEASE

September 19, 2019
Contact: Leah Nash
leahnash@hemophiliaflorida.org
407.629.0000 X103

 

HEMOPHILIA FOUNDATION AWARDS $28,800 IN ANNUAL STATEWIDE SCHOLARSHIPS
Most Recipients Pursuing Degrees in the Sunshine State

The Hemophilia Foundation of Greater Florida (HFGF) awarded 14 students attending college this fall with scholarships totaling $28,800. Since the scholarship’s inception, HFGF has granted close to $180,000 to worthy recipients with bleeding disorders.

The Calvin Dawson Memorial Scholarship, named in honor of founder and first executive director of the HFGF, has been assisting those in the bleeding disorders with their higher education for the past 20 years.

“It is always such a pleasure to help these you ng men and women as they pursue their educations,” says HFGF Executive Director Fran Haynes. “Eighty-nine percent of all HFGF fundraising dollars assist members of the bleeding disorders community, including our annual scholarships program.”

HFGF scholarships are earmarked for Floridians with hemophilia, von Willebrand disease and other related hereditary bleeding disorders. Scholarships are attainable for high school graduates pursuing post-secondary education at a college, technical or trade school, or through other certification programs. Awards are based on merit, need, community service, and ambitions of the applicant as reflected in an essay.

Only two recipients are attending out-of-state schools while the remainder remain in state. This year’s recipients are:

Alexia Barillas, (Boca Raton) Palm Beach State College; Andrew Farren, (St. Petersburg) St. Petersburg College; Faith Runyon (Ocala) College of Central Florida; Herman Robinson (Tampa) Webber International University; Hope Runyon (Ocala) College of Central Florida; James Solomon (Clermont) University of Central Florida; Justin Horbacz (Reunion) University of Florida; Michael Berkman (Windermere) Syracuse University; Miguel Diaz-Burgos (Ocoee) Valencia College; Natalie Rubin (Tampa) University of South Florida;  Olivia HoffSaint (Tampa) Mary’s College; Raymond Torres (Valrico) University of Central Florida; Tyler Nazario (Melbourne) Eastern Florida State College; and Xavier Fuentes (Orange Park) University of Florida.

Please visit hemophiliaflorida.org for more information about HFGF, hemophilia and other bleeding disorders, and/or HFGF fundraising walks.

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Note To Media:  If you’d like more information about the Hemophilia Foundation of Greater Florida, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at leahnash@hemophiliaflorida.org or 407.629.0000 X103.

September 12, 2019

 

Contact: Leah Nash

leahnash@hemophiliaflorida.org

407.629.0000 X103

FOR IMMEDIATE RELEASE

 

Red Fundraiser to Usher in 2020

Support a Cause and Tour the Exclusive American Muscle Car Museum

 

Don your favorite red cocktail attire and kick off 2020 at the Hemophilia Foundation of Greater Florida (HFGF) Red Party, January 18, hosted by the American Muscle Car Museum in Melbourne. The inaugural event will support Florida’s bleeding disorders community. Sponsorships are available.

 

Besides the collection of more than 250 cars on display in a 123,000 square-foot facility, the museum is distinct because it is not open to the public. Viewing can only be accessed at events like the HFGF Red Party or scheduled private tours.

 

Tickets for the fundraiser are $100, which includes a reception with light hors d’oeuvres, drinks, a live auction and access to the museum.  A limited number of VIP tour tickets are also available for $200.  The tour is led by museum owner Mark Pieloch.

 

Chris Carson, whose one-year-old son was diagnosed with Hemophilia six months ago, is friends with Mark and helped coordinate the event.

 

“Mark is so gracious to open the museum for the bleeding disorders community so we can raise some money and build awareness for Hemophilia,” says Chris.

 

Fran Haynes, HFGF executive director, says 89% of the money raised from the HFGF Red Party will support programs for Florida’s bleeding disorders community such as the HFGF medically supervised Camp Spirit, family support weekends, health educational programs and financial emergency assistance. HFGF has been serving the bleeding disorders community since 1996 by supporting healthier and more independent lives.  

 

“Members of the Brevard County bleeding disorders community spearheaded this event to raise funds and build awareness on the east coast of Florida,” says Fran. “We hope everyone will wear red to show their support.”

 

For tickets and sponsorship information, visit http://www.hemophiliaflorida.org/redparty. For more information about HFGF, Hemophilia and other bleeding disorders, and/or HFGF fundraising efforts, visit hemophiliaflorida.org. Personal chronicles can found at hemophiliaflorida.org/VoicesofHFGF.

 

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Note To Media: If you’d like more information about the Hemophilia Foundation of Greater Florida, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at leahnash@hemophiliaflorida.org or 407.629.0000 X103.

Wendy Wei and Family
Resides: Gainesville
Home Country: China
Involvement with HFGF: 11 years 

Wendy Wei and her family have been involved with the Hemophilia Foundation of Greater Florida for almost as long as they have been living in the United States. Wendy and her husband Eugene emigrated from China in 2005 to Gainesville, and soon thereafter welcomed two sons, both diagnosed at birth with Hemophilia A. Wendy was aware she was a carrier; bleeding disorders are present on her mother’s side of the family.

After Andrew, 11, was born with moderate Hemophilia A, she and her husband reached out to the Foundation. Three years later, Kevin, 8, was brought into the world with severe Hemophilia A. Both boys require twice-a-week infusions.

Beyond living with a bleeding disorder and requiring factor, Wendy says the boys are very well-adjusted.

“Sometimes they get sad, but then they are fine,” she says. “They are pretty good kids.”

Andrew is now in the fifth grade, and Kevin is in second. Both have joined swim teams.

The boys have also taken a liking to the Foundation’s Camp Spirit at Camp Boggy Creek. Andrew has been to camp three times; Kevin attended for the first time last year.

“They love it!” Wendy exclaims. “They like the activities and the volunteers. The boys have super fun. I feel they are pretty comfortable at camp. They see that they are not the only ones in the world with this disorder.”

Wendy says the four of them also participated in a family retreat weekend at Camp Boggy Creek.

The entire family are regulars at the Gainesville Gator Clot Trot as well, scheduled for March 23 this year. Wendy says she is also thankful for all of the education offered at special events sponsored by the Foundation.

“I am so grateful for the speakers who share the newest information and studies concerning bleeding disorders,” she says.

CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.