Wendy Wei and Family
Home Country: China
Involvement with HFGF: 11 years
Wendy Wei and her family have been involved with the Hemophilia Foundation of Greater Florida for almost as long as they have been living in the United States. Wendy and her husband Eugene emigrated from China in 2005 to Gainesville, and soon thereafter welcomed two sons, both diagnosed at birth with Hemophilia A. Wendy was aware she was a carrier; bleeding disorders are present on her mother’s side of the family.
After Andrew, 11, was born with moderate Hemophilia A, she and her husband reached out to the Foundation. Three years later, Kevin, 8, was brought into the world with severe Hemophilia A. Both boys require twice-a-week infusions.
Beyond living with a bleeding disorder and requiring factor, Wendy says the boys are very well-adjusted.
“Sometimes they get sad, but then they are fine,” she says. “They are pretty good kids.”
Andrew is now in the fifth grade, and Kevin is in second. Both have joined swim teams.
The boys have also taken a liking to the Foundation’s Camp Spirit at Camp Boggy Creek. Andrew has been to camp three times; Kevin attended for the first time last year.
“They love it!” Wendy exclaims. “They like the activities and the volunteers. The boys have super fun. I feel they are pretty comfortable at camp. They see that they are not the only ones in the world with this disorder.”
Wendy says the four of them also participated in a family retreat weekend at Camp Boggy Creek.
The entire family are regulars at the Gainesville Gator Clot Trot as well, scheduled for March 23 this year. Wendy says she is also thankful for all of the education offered at special events sponsored by the Foundation.
“I am so grateful for the speakers who share the newest information and studies concerning bleeding disorders,” she says.
FOR IMMEDIATE RELEASE
February 15, 2018
Contact: Leah Nash
Gator Clot Trot Kickoff
Hemophilia Foundation of Greater Florida
Sunday, February 18, 2018; 10:30 AM-12:30 PM
Enjoy some food, mingle with other teams and have a chance to win some prizes all while registering for the 7th Annual Gator Clot Trot, April 7, 2018, at Depot Park in Gainesville. Plus everyone will be given free tickets that include a soda and hotdog for Sunday’s UF v. Sienna baseball game at Alfred A. McKethan Stadium.
Who Should Attend:
All Team Captains/Registrants
The Matthews Room, J. Wayne Reitz Union, 655 Reitz Union Drive
Did you know that 91% of fundraising dollars from HFGF events go toward supporting programs for Florida’s bleeding disorders community? Visit hemophiliaflorida.org/gainesville for more information.
Note To Media: If you’d like more information about 7th Annual Gator Clot, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at firstname.lastname@example.org or 407.629.0000 X103.
The Hemophilia Foundation of Greater Florida (HFGF) is pleased to present the 16th Annual Evening on Broadway, February 17, 2018, to see The Lion King live on stage at the beautiful Dr. Phillips Center for the Performing Arts in downtown Orlando.
Tickets, which include a reception with silent auction/raffle, as well as orchestra seating are now available for $150, of which more than 90% will go to the bleeding disorders community in Florida. The reception begins at 6 p.m., followed by the performance. Visit hemophiliaflorida.org/theatre to purchase your tickets before they run out.
The 16th Annual Evening on Broadway supports the Florida bleeding disorders community through family support weekends, health educational programs, providing financial emergency assistance, scholarships to students, and sending HFGF patients to a medically supervised summer called Camp Spirit.
The cost of treatment varies for those who have hemophilia and other bleeding disorders, however, costs are typically high due to the price of medication, as well as the number of times it must be administered. A single dose of clotting medication, for example, which sometimes only lasts one day, can cost as much as $6,500—or more. These costs do not reflect procedures that are outside of routine maintenance, such as having a tooth pulled, which could run in excess of $20,000.
“Our patients need us, and we are here to help them,” says Fran Haynes, HFGF Executive Director. “We try not to turn anyone away.” HFGF has been serving the bleeding disorders community since 1996 by supporting healthier and more independent lives.
HFGF is also looking for silent auction and raffle gifts. If your company would like to donate, please contact email@example.com, or call 407.629.0000.
Note To Media: If you’d like more information about the 16th Annual Evening on Broadway, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at firstname.lastname@example.org or 407.629.0000 X103.
FOR IMMEDIATE RELEASE
September 20, 2017
Contact: Leah Nash
GET YOUR BLOOD PUMPING FOR HEMOPHILIA
Funds Raised Benefit Those Impacted By Hurricane Irma
The Hemophilia Foundation of Greater Florida (HFGF) is howling to host its annual Jacksonville Creepy Crawl 5K and Vampire Mile on October 14th at the spooky Nocatee community, located at 100 Marketside Avenue in Ponte Vedra. Runners and walkers are invited to register now for this hair-raising 5K and mile walk and encouraged to fundraise for the HFGF bleeding disorders community. Costumes are welcome! Wicked awards will be presented for top team and individual fundraisers, most spirited teams, best Halloween costumes, and top male and female runners in various age groups. The 5K will be officially timed for runners.
This part isn’t scary: Approximately 90% of fundraising dollars from events support programs for Florida’s bleeding disorders community such as the HFGF medically supervised summer Camp Spirit, family support weekends, health educational programs, and financial emergency assistance. With the recent effects of Hurricane Irma, this year’s walks are particularly important.
“Our patients have been affected by Hurricane Irma and we are here to help them,” says Fran Haynes, HFGF Executive Director. “We will surely receive more requests this year for emergency financial assistance than we have in the past due to Hurricane Irma.” HFGF has been serving the bleeding disorders community since 1996 by supporting healthier and more independent lives.
Visit hemophilliaflorida.org/Jacksonville for more information, or to register for either the 5K or mile walk. 5K registration is $30 per participant.
Note To Media: If you’d like more information about the Jacksonville Creepy Crawl 5K and Vampire Mile, or to schedule an interview with HFGF staff or members of the bleeding disorders community, please contact Leah Nash at email@example.com or 407.629.0000 X103.