The Hemophilia Foundation of Greater Florida, a Chapter of the National Hemophilia Foundation, has been helping people with bleeding disorders since 1996. We have helped the bleeding disorders community improve their quality of life by offering programs and services to support healthier and more independent lives.
MASAC Document #216
The following statement was approved by the Medical and Scientific Advisory Council (MASAC) on April 14, 2013, and adopted by the NHF Board of Directors on May 10, 2013.
Inhibitor development is the single most important complication of clotting factor concentrate usage, especially for patients with severe hemophilia A. Based on the total body of current knowledge and emerging data available at this time, any Factor VIII (FVIII) preparation can be associated with alloantibody inhibitor formation, especially in previously untreated patients (PUPs) with hemophilia.
Last Updated on Wednesday, 31 July 2013 15:13
The marketing terms “new and improved” and “longer lasting” are not limited to the latest brand of chewing gum. They also apply to a long list of therapies now in clinical trials for people with bleeding disorders. Some people have waited years for a new recombinant product; others a lifetime for any factor product to treat their rare condition. For many, their patience is about to pay off.
There are more drugs in the pipeline now than in the past few decades. “The companies’ commitment to continue to work on behalf of patients with bleeding disorders is what’s driving it,” says Val D. Bias, CEO of the National Hemophilia Foundation (NHF). The dilemma facing many patients in the future won’t be a lack of medications, but a plethora of products that act in a variety of ways. (See table “Bleeding Disorders Drugs in Human Clinical Trials.”)
Last Updated on Tuesday, 25 June 2013 00:34
You May Be Able to Get Coverage through the Affordable Care Act
If you haven't been able to get real, affordable coverage for at least 6 months due to a pre-existing medical condition, you may now qualify for coverage through a new program called the Pre-Existing Condition Insurance Plan, or PCIP.
PCIP, often described as the “high risk pool,” is part of the new health law, the Affordable Care Act. PCIP is a temporary program that will expire when health insurance exchanges start in 2014.
PCIP applications are available now at PCIP.gov.
Last Updated on Thursday, 05 January 2012 17:45
Last Updated on Tuesday, 25 June 2013 00:43