Voices of HFGF

Welcome To Voices of HFGF

HFGF has so many stories to share.  Stories of our patients, medical community, staff, and so much more.  We’ve decided to collect these stories and share them with you so you can see the very special community that HFGF has fostered here in the state of Florida, a community of endurance, support, and hope.  Please share our stories and thank you for listening.

Dawn & Patrick Solomon

When Dawn and Patrick Solomon moved to the Orlando area close to 20 years ago, they already had a son with hemophilia and a daughter who was a carrier.

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Mendy & Nathan Hood

Sometimes when you least expect it, an incident occurs in your life that couldn’t be more timely for the situation.

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The Tuttle Family

Aaron Tuttle goes through cycles when it comes to being accepting of his infusions. At times, he wonders aloud, “Why do I have to do this? Why do I have to be different than other people?” Then, other times, he is totally amenable to the treatments and his lot in life.

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Javier Aguilu

Javier Aguilu grew up in Puerto Rico at a time when treatment for hemophiliacs was scarce. The 58-year-old Casselberry resident inherited his condition from his mother.

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Missy Zipple

Before officially retiring three years ago this June as a hemophilia nurse coordinator at Nemours Children’s Clinic in Jacksonville, Missy Zipple served for 38 years as a health care provider, educator and friend to a countless number of grateful children throughout the state affected by hemophilia.

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NICKI SALOPEK & CARTER FAHRUBEL

Nicki Salopek and her husband Bart Fahrubel were a bit surprised by the diagnosis of their son, four-year-old Carter Fahrubel. There is no record or evidence that hemophilia has ever been a part of their family.

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JOE RIGGS

Like many Baby Boomers diagnosed with hemophilia as an infant, the road to survival was not an easy one for Joe Riggs. Prior to present-day long-lasting factor VIII and a true understanding of the disease, people like Joe had to struggle through much of their young lives in order to stay alive.

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TONY BROWN

Tony has been helping patients get through the tough times by using his firsthand knowledge as a fellow hemophiliac who has seen his share of ups and downs.

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KIM LAMB & SHEEKERIA HARGRAVE

When the bleeding disorders community is within the four walls of the home in which you grew up, you tend to know a bit more about the condition than most people. It can be a blessing and frustrating at the same time.

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Natalie Rubin

Natalie Rubin is fresh off of her first week at Camp Boggy Creek as a leader in training, working with young cancer patients. .

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Samantha and Tyler Nazario

Tyler was born in New York City, as was his mom Samantha, who says bleeding disorders were regularly undiagnosed in the borough’s Hispanic communities. She recalls bringing Tyler to the hospital because of bruising on his spinal cord, knowing something was amiss.

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Andrew Farren

A Hemophilia Foundation of Greater Florida scholarship recipient with aspirations to become a pediatric physician, Andrew Farren is pumped about what lies ahead as he enters his second year at St. Petersburg College.

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The Wyrick Family

Alex Wyrick already knows what he wants to do with his life. The ten-year-old native Floridian has his mind set on becoming a chef.

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Genesis Erickson

The 18-year-old University of North Florida (UNF) freshman with an eye on the medical field was 14 before she was finally diagnosed with von Willebrand’s disease at John Hopkins All Children’s Hospital in St Pete.

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The Wei Family

Wendy Wei and her family have been involved with the Hemophilia Foundation of Greater Florida for almost as long as they have been living in the United States. Wendy and her husband Eugene emigrated from China in 2005 to Gainesville, and soon thereafter welcomed two sons, both diagnosed at birth with Hemophilia A. Wendy was aware she was a carrier; bleeding disorders are present on her mother’s side of the family.

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Brett Palaschak

Brett Palaschak realized at an early age that playing contact sports with his friends was not in the cards. So he decided to take the high road, hit the books and learn all he could about hemophilia in order to educate those same friends about what he was going through. Pretty impressive for a kid.

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The Gonzalez Family

Brandyn and Nicole Gonzalez knew very little about bleeding disorders, much less that there was a community of those dealing with such disorders. After being married less than two years, the Wesley Chapel couple welcomed their first child nine months ago.

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Cody and Marlene Horne

Cody Horne just wants to play soccer.  The seven-year-old son of Marlene is so set on that goal that he asked the doctor for her permission on a recent wellness visit. While he did get the go-ahead he was seeking, his mom is not so sure.

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Jonathan Lebron

Twenty-three-year-old Jonathan Lebron thanks his parents for his optimistic outlook on life, regardless of being diagnosed with Severe Hemophilia A when he was less than a year old.

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Coleman Safi

Coleman Safi tells it like it is. At just 12 years old, the Jacksonville seventh grader is not shy about relating his short-life story. Whether it’s recalling the good times or the not-so-memorable ones, Coleman loves to share his thoughts.

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Noah Carson

Few things are as gut wrenching as watching your baby prodded and poked while you stand by helpless to quell the tears. Even worse, being questioned at the same time by social workers implying abuse. Chris Carson and Alicia Norris know these haunting emotions all too well. Their second son, Noah, who just turned a year old, was late in being diagnosed with Hemophilia, causing a chain reaction of fact-finding hospital visits and false insinuations.

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CHANGE THEIR WORLD. CHANGE YOURS. THIS CHANGES EVERYTHING.