Welcome To Voices of HFGF
HFGF has so many stories to share. Stories of our patients, medical community, staff, and so much more. We’ve decided to collect these stories and share them with you so you can see the very special community that HFGF has fostered here in the state of Florida, a community of endurance, support, and hope. Please share our stories and thank you for listening.
The Tuttle Family
Aaron Tuttle goes through cycles when it comes to being accepting of his infusions. At times, he wonders aloud, “Why do I have to do this? Why do I have to be different than other people?” Then, other times, he is totally amenable to the treatments and his lot in life.
Before officially retiring three years ago this June as a hemophilia nurse coordinator at Nemours Children’s Clinic in Jacksonville, Missy Zipple served for 38 years as a health care provider, educator and friend to a countless number of grateful children throughout the state affected by hemophilia.
NICKI SALOPEK & CARTER FAHRUBEL
Nicki Salopek and her husband Bart Fahrubel were a bit surprised by the diagnosis of their son, four-year-old Carter Fahrubel. There is no record or evidence that hemophilia has ever been a part of their family.
Like many Baby Boomers diagnosed with hemophilia as an infant, the road to survival was not an easy one for Joe Riggs. Prior to present-day long-lasting factor VIII and a true understanding of the disease, people like Joe had to struggle through much of their young lives in order to stay alive.
KIM LAMB & SHEEKERIA HARGRAVE
When the bleeding disorders community is within the four walls of the home in which you grew up, you tend to know a bit more about the condition than most people. It can be a blessing and frustrating at the same time.
Samantha and Tyler Nazario
Tyler was born in New York City, as was his mom Samantha, who says bleeding disorders were regularly undiagnosed in the borough’s Hispanic communities. She recalls bringing Tyler to the hospital because of bruising on his spinal cord, knowing something was amiss.
A Hemophilia Foundation of Greater Florida scholarship recipient with aspirations to become a pediatric physician, Andrew Farren is pumped about what lies ahead as he enters his second year at St. Petersburg College.
The 18-year-old University of North Florida (UNF) freshman with an eye on the medical field was 14 before she was finally diagnosed with von Willebrand’s disease at John Hopkins All Children’s Hospital in St Pete.
The Wei Family
Wendy Wei and her family have been involved with the Hemophilia Foundation of Greater Florida for almost as long as they have been living in the United States. Wendy and her husband Eugene emigrated from China in 2005 to Gainesville, and soon thereafter welcomed two sons, both diagnosed at birth with Hemophilia A. Wendy was aware she was a carrier; bleeding disorders are present on her mother’s side of the family.